Research, treatment and recognition for people with ME/CFS and post-infectious syndromes

Mar 2025 | Guest article Ricarda Piepenhagen

Research, treatment and recognition for people with ME/CFS and post-infectious syndromes

This guest article by Ricarda Piepenhagen, founder of the patient organisation NichtGenesen (NotRecovered), addresses the healthcare requirements of patients affected by Long COVID, ME/CFS and Post-Vac syndrome. It describes the challenges that the patients themselves have to face, as well as the challenges posed to science, medicine and society as a whole, from the point of view of those affected by post-infectious diseases.

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Das Bild zeigt ein Portraitfoto von Ricarda Piepenhagen, Gründerin der Patientenorganisation NichtGenesen

© Martin Börner

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Guest article Ricarda Piepenhagen

Ricarda Piepenhagen is the founder of the patient organisation NichtGenesen. The patient organisation represents the interests of those affected by Long/post-COVID, ME/CFS and Post-Vac syndrome, as well as those affected by post-infectious syndrome (PAIS) in general. The guest article highlights historical parallels, explains the situation of patients affected and highlights the urgent need for action from the patient's perspective.